| 王小钦,林果为.上海市急性白血病长期生存患者生命质量调查[J].Chinese journal of Epidemiology,2003,24(11):1049-1051 |
| 上海市急性白血病长期生存患者生命质量调查 |
| Study on the quality of life inlong-term survivors with acute leukemia in Shanghai |
| Received:April 07, 2003 |
| DOI： |
| KeyWord: 急性白血病 生命质量 |
| English Key Word: Acute leukemia Quality of life |
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| Abstract: |
| 目的了解上海市急性白血病(AL)长期生存患者的生命质量。方法从上海市1984年1月1日至1994年12月31日从29家医院发病的1379例患者中选择生存时间>5年的95例长期生存患者为研究对象。用统一的FACTG量表了解长期生存患者的生命质量。结果95例长期生存的患者中大多数患者基本达到正常的生命质量,其总的生命质量评分为85分,年龄>60岁和文盲患者其生命质量评分比较高。近50%患者恢复正常的全日工作和学习,12.6%患者在化疗后继发疾病,已婚患者中近一半人对性生活不满意。结论AL长期生存患者预防继发疾病和保护性功能应引起足够的重视,复发和治疗经费是长期生存患者最担心的问题。 |
| English Abstract: |
| Objective To assess the quality of life ( QOL) inlong-term survivors with acute leukemia (AL). Methods Ninety-fivelong-term survivors with AL drawn from 29 hospitals in Shanghai during theperiod 1984-1994 were studied. Questionnaire FACT-G was completed in order to assess the QOL forlong-term survivors with AL. Results Questionnaires assessing QOL were filled in by 95long-term survivors with AL. Majority of the survivor turned ouThaving normal QOL. The average QOL score was 85. Patients aged over 60 years old and illiterate had higher QOL score. AbouT50% of the patients had returned toful-l time job or school. 12. 6% of the patients had had secondary diseases due to chemotherapy. Nearly half of the married patients were noTsatisfied with their sexual life. Conclusion Thus, prevention of having secondary diseases and to keep sexual function musTcall for serious attention during chemotherapy. The biggesTchallenge was to prevenTrelapse and the affordability to treatment. |
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