| 岳和欣,湛永乐,边峰,张一方,桂路婷,石英杰,孟耀涵,张娟,江宇.临床队列研究的数据标准与共享[J].Chinese journal of Epidemiology,2021,42(7):1299-1305 |
| 临床队列研究的数据标准与共享 |
| Data standard and data sharing in clinical cohort studies |
| Received:June 10, 2020 |
| DOI：10.3760/cma.j.cn112338-20200610-00831 |
| KeyWord: 临床 队列研究 数据 标准 共享 |
| English Key Word: Clinical Cohort study Data Standard Sharing |
| FundProject:中国医学科学院医学与健康科技创新工程（2019-I2M-2-004）；食管癌和肝癌专病队列研究 |
| Author Name | Affiliation | E-mail | | Yue Hexin | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | | | Zhan Yongle | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | | | Bian Feng | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | | | Zhang Yifang | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | | | Gui Luting | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | | | Shi Yingjie | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | | | Meng Yaohan | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | | | Zhang Juan | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | | | Jiang Yu | School of Population Medicine and Public Health, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100730, China | jiangyu@pumc.edu.cn |
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| Abstract: |
| 数据标准在临床队列研究的数据收集、整合及共享过程中发挥着重要作用，并逐渐受到重视。本研究通过对5项国际成熟的数据标准模型进行综述，总结其特点和发展现状，并将各模型的数据模块与临床队列通用数据集进行匹配，以探究国际数据标准模型的适用性，为我国临床队列研究数据标准模型的制定与完善提供参考。 |
| English Abstract: |
| Data standard plays an important role in the process of data collection, Integration and sharing in clinical cohort studies, and more attention have been paid to it. This paper summarizes the 5 international proven data standard model, analyze their characteristics and development status, and match their data modules with the general data set of the clinical cohorts to evaluate the international data standard models' applicability and provide reference for the development and improvement of the data standard model for clinical cohort studies in China. |
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